A staggering £1802.37 donated in the last 48 hours
to take us to a grand total of...
£5817.33!
We are so stunned...
And everyone is getting on board with more fund raising ideas which is totally awesome!
Thank you for inspiring us to continue
and for all of your kind words and words of support...
they mean so much...
Now, there will be radio silence over the weekend...
This week has been exhausting and I need some time out...
But first it is the Muscular Dystrophy Campaign Conference in Glasgow tomorrow and Nicola Sturgeon is the Keynote Speaker who will no doubt be discussing the Mackie Report. The Mackie Report, which is the result of an Inquiry into the Provision of Services for Neuromuscular Disease in Scotland, emphasises that inequalities exist in the provision of specialist neuromuscular care and social care.
I only wish that I could think of a sensible, well-thought out question to ask her. I wonder if she will listen to what I have to say about our experience...
No comments:
Post a Comment