1 year

1 year.

365 days.

8760 hours.

525600 minutes.

42048000 heart beats.

From Spring

To Summer,

Through Autumn & Winter

And back to Spring again.

It has felt like a lifetime in our family

And we would, if we could,

Change it in a heartbeat.

1 year living with SMA.

Thank you Eilidh for being our guiding star.

xxx

24

24 hours til the
West Whizzyland Way Walk!


Walkers are packing...
tents and gear
mars bars and jelly

beer and whisky.

What will the weather do?

Rain or Shine,

Wind and Hail?

Will the volcanic ash stay away?

We will be with you every step of the way fabulous walkers...

Well, at least to send you off properly with a wee wave goodbye!

You have done a fab job of fundraising so far...

We are totally humbled!

We - well, Fish has! - have featured in some online ROCK! magazines here and here...

so if you are visiting - hello!

But perhaps most importantly, there is still time to donate and make a difference to some one's life as we are fund raising for Muscular Dystrophy Campaign, Turbo Trust, Jennifer's Trust and Eilidh's Whizzy Wheels.

Donate here...

THE Wedding of the Year!

Nick and Diane are getting married!

Whoopeeeeeeeee!!!

On the 11th day of the 11th month of 2011 they will become husband and wife and we wish them much love, laughter and happiness, now and always.

Nick and Diane suggested to us a while ago that they would like to dedicate their wedding list to Eilidh: they have been living together for over 10 years and do not feel that they need or want anything and would much rather that their guests donated to Eilidh and The Whizzy Wheel Fund.  They have 2 little girls, one who is just about the same age as E and they cannot imagine what we are going through and want to support us.

We are blown away and moved to tears by their kindness; so if you are visiting here to donate to their wedding list, thank you and we look forward to seeing you at the wedding to celebrate Nick and Diane's marriage.

To donate, please click on the button below and it will take you through to paypal

Momentum

Fundraising for the West Whizzyland Way Walk next week is gaining momentum...

It's amazing to watch!

We are humbled by everyone's kindness and generosity so far, but please keep donating...

All monies will be split between

The Muscular Dystrophy Campaign
The Turbo Trust
Jennifer's Trust
& Eilidh's Whizzy Wheels.

Thank you to everyone who has already donated -
you will make a difference to someone's life.

Rock Legend Gets Whizzy

Now Eilidh's grannie, aka rockchickgranny, works for Fish
And let's be honest....
What a ROCK L.E.G.E.N.D he is!

Today Fish announced on The Company website that He, some of his fans and rockchickgranny are walking the West Highland Way for Eilidh and some of her favourite charities!!

Wow-weeeeeeeeeeeeee!

So get your walking boots on and join them if you are interested:

"WEST HIGHLAND WAY

27TH MAY – 2ND JUNE

As many of you know Elspeth’s 2 year old granddaughter Eilidh has been diagnosed with Spinal Muscular Atrophy Type 2 and, although very bright, cheeky, and mischievous, is now wheelchair dependent.

The monies raised from this year’s walk will be shared between Eilidh’s Whizzy Wheel Fund (http://www.whizzywheels.blogspot.com/), a fund solely providing equipment for Eilidh, and three charities who have been instrumental in helping Eilidh and her family over the last few months: The Muscular Dystrophy Campaign (http://www.muscular-dystrophy.org/), The Turbo Trust (http://www.theturbotrust.org/) and Jennifer’s Trust (http://www.jtsma.org.uk/).

thanks for all your support with this
all the best
Fish"

Eilidh's Moves!

I am so, so sorry that I haven't posted in ages, but here is a world exclusive! (well, not quite!)

After some "peep-peep"ing

and

"up.... down"ing

and

lots of

roundandroundandroundandround

and with some tantalising and teasing with marshmallows...

Eilidh finally moves with purpose and direction...

Check her out!

We are so very proud of her...

Thank you once again to everyone who has made this possible:

We are forever endebted to your kindness and generosity.