Showing posts with label jennifer's trust. Show all posts
Showing posts with label jennifer's trust. Show all posts

Tuesday, 29 November 2011

X-Factor-Tastic!





If you are one of the many (or few!) who don't watch X-Factor...


The X-Factor Finalists, along with JLS and One Direction have covered Rose Royce's Wishing on a Star and the song will raise money for children living with a life shortening disease.  Together For Short Lives and 50 other charities will benefit from the proceeds from the sale of the single .  These charities include Jennifer's Trust which is the only charity in the UK who solely offer services for those with SMA and their families and friends.  Maggie, an Outreach Worker from JTSMA,  was invaluable to us in the early days after Eilidh's diagnosis, providing information and much needed support at a difficult time.


23,500 children and young people in the UK are unlikely to see adulthood; these children, with their families and friends, live with their disease every single day and it not only affects them physically but also mentally and emotionally and can impact on every aspect of family life.  Many, if not all, will need additional support and the charities benefiting from the sale of this single focus on improving quality of life for the families and providing help and support.  These charities enable families affected by life shortening diseases to cope with the everyday.



"Life is precious.  You only get one shot.  You live your life as if it was your last day and basically we try to do that every single day of the year."



So, please, please, please help these children live each day, with the love and support of their families and friends, as it it were their last; buy the single and make a difference today...  Life is so very precious...







More information about the Lloyd Family - as featured on the link above - can be found here.

Friday, 29 July 2011

The West Whizzyland Way Totaltastic Total!

It's the day that we've been waiting for...

The BIG announcement!

On the 27th May Fish and his intrepid walkers took to The West Whizzyland Way aka The West Highland Way to raise money for The Turbo Trust, The Muscular Dystrophy Campaign, The Whizzy Wheel Fund and Jennifer's Trust.  They walked through four seasons in one day - experiencing some awful weather, wind blown tents and soggy sleeping bags along the way - to complete the world renowned walk in 7 days. 









At 96 miles The West Highland Way starts at Milngavie passes through Mugdock Country Park, follows the shores of Loch Lomond, passing Ben Lomond, through Glen Falloch and Strathfillan, crossing Rannoch Moor, past Buachaille Etive Mor to the head of Glencoe, climbing the Devil’s Staircase, descending to sea level to cross the River Leven at the head of Loch Leven before entering Lairigmor and Glen Nevis and finishes at Gordon Square in Fort William.  The beautiful landscape changes from lowland moors, dense woodland and rolling hills, to high mountainous landscapes.


Each and every walker walked their little socks off and I am proud of them all.  I am also very grateful and thankful for every mile that they have walked, not only for Eilidh but for the three charities that we support. 





the very beginning...

t.h.a.n.k y.o.u !

Christoph Free, Mary Colgan, John Strain, Janice Booth, Jamie Symington, Caroline Thain, Jim Mitchell, Gill Adams, Nick & Cath Jefferson and Bella, Jim Pender, John Boyle, Ian Marshall, Graeme Congalton, Rab Purdie, Drew Sutherland (who unfortunately couldn't make it to the walk through injury - hope that it's better!), Joe Vincent, Ian Allan (even though he was getting married) and Sue Arber.


Thank you to Ian Mitchell for driving the support vehicle and generally looking out for the walkers - what a great help you were! A total foot-saver!!

Thanks also to Ross Prentice for donating the fuel to shuttle everyone and their luggage to and fro between camps - the support vehicle would have been stuck without it! Thank you for your kind donation.


I have to say a big thank you to  Fish because without him this wouldn't have been possible; he brought these people together, they wanted to walk with him.  Fish, you rock!  Thank you from the bottom of our hearts.



@ the off

t.h.a.n.k y.o.u !



And to Eilidh's granny, aka Rock Chick Granny; 



the end... at last!

t.h.a.n.k y.o.u !


Without you none of this could have happened!  Your love for Eilidh is abundant - you would do anything for her and here you are walking 96 miles with a dodgy knee to raise money for her and the charities who have supported us over the last year - what a fantastic grannie you are!




And now...

drum roll please...

the final total is

a whopping,

a staggering,

£8304.47!


How awesome! 

t.h.a.n.k y.o.u !  t.h.a.n.k y.o.u !  t.h.a.n.k y.o.u !

to everyone involved and to all of you who donated money and to Fish fans the wide world over - you did this! 

t.h.a.n.k y.o.u !







(Monies divided as such: £3094.47 The Turbo Trust; £3000 The Muscular Dystrophy Campaign; £1209.97 The Whizzy Wheels Fund - donated directly for this fund; £1000 The Jennifer's Trust)

(Please note that the total is not including gift aid from monies raised through Justgiving)


Thursday, 26 May 2011

24

24 hours til the
West Whizzyland Way Walk!


Walkers are packing...
tents and gear
mars bars and jelly
beer and whisky.

What will the weather do?
Rain or Shine,
Wind and Hail?
Will the volcanic ash stay away?

We will be with you every step of the way fabulous walkers...
Well, at least to send you off properly with a wee wave goodbye!
You have done a fab job of fundraising so far...
We are totally humbled!


We - well, Fish has! - have featured in some online ROCK! magazines here and here...
so if you are visiting - hello!



But perhaps most importantly, there is still time to donate and make a difference to some one's life as we are fund raising for Muscular Dystrophy Campaign, Turbo Trust, Jennifer's Trust and Eilidh's Whizzy Wheels.

Donate here...









Friday, 20 May 2011

Momentum

Fundraising for the West Whizzyland Way Walk next week is gaining momentum...

It's amazing to watch!

We are humbled by everyone's kindness and generosity so far, but please keep donating...

All monies will be split between

The Muscular Dystrophy Campaign
The Turbo Trust
Jennifer's Trust
& Eilidh's Whizzy Wheels.

Thank you to everyone who has already donated -
you will make a difference to someone's life.

Wednesday, 18 May 2011

Rock Legend Gets Whizzy

Now Eilidh's grannie, aka rockchickgranny, works for Fish
And let's be honest....
What a ROCK L.E.G.E.N.D he is!

Today Fish announced on The Company website that He, some of his fans and rockchickgranny are walking the West Highland Way for Eilidh and some of her favourite charities!!

Wow-weeeeeeeeeeeeee!

So get your walking boots on and join them if you are interested:




"WEST HIGHLAND WAY
27TH MAY – 2ND JUNE

As many of you know Elspeth’s 2 year old granddaughter Eilidh has been diagnosed with Spinal Muscular Atrophy Type 2 and, although very bright, cheeky, and mischievous, is now wheelchair dependent.

The monies raised from this year’s walk will be shared between Eilidh’s Whizzy Wheel Fund (http://www.whizzywheels.blogspot.com/), a fund solely providing equipment for Eilidh, and three charities who have been instrumental in helping Eilidh and her family over the last few months: The Muscular Dystrophy Campaign (http://www.muscular-dystrophy.org/), The Turbo Trust (http://www.theturbotrust.org/) and Jennifer’s Trust (http://www.jtsma.org.uk/).

thanks for all your support with this
all the best
Fish"